Each day brings endless unknowns.
Each seizure brings more
anxiety and fear.
He shows his resilience,
He shows his innocence,
Love every moment.
Tag Archives: creative-writing
I noticed that my fingers are sore in my right hand. This is the hand I write with , but for some reason the bones in that hand are acting as if the are healing again. Or as if they were broken again and needed to be reset.
It’s very painful. It may be due to my using one finger to type with because the rest of the fingers aren’t in a natural position, like when typing.
All I know is that my right hand cramps up terrible to the point of pain when I have a spoon or knife in that hand. I was making supper for the boys and when I released the knife, putting it down on the counter, I had a pain stab through my hand.
The words and ideas keep jumping in my mind. Sometimes I respond to their demand for acknowledgment. Each time I do, there is a release of joy, purpose, satisfaction for the creativity on the page. I like it. It feels good. My mind forgets the pain in my hand, and I feel redeemed.
Holding the Spark
Last week, I was contemplating a degree in Creative Writing; an MFA. Today, I’m contemplating the personal experience of my son’s tragic accident of four years ago. My mind spins with constant activity of new goals. New ideas and new projects, want to leap to completion without the drudging of daily plodding. This daily plodding often becomes Continue reading
Sitting with my 8 year old disabled son on my lap as I listen to the solo performance of Breath of Heaven, I feel the tears fighting their way to the surface. I hold my son because the seizures seem to avoid him if he feels comfort from an embrace of love. The soloist’s voice carries my tears closer to the surface as I identify with the pain, struggle and loneliness of being a caregiver. I adjusted his shirt, his position, searching to slow my breath and keep the tears back.
As she sang, “I have traveled many moonless nights with a babe inside, and I wonder what I’ve done.” The truth broke through my wall of protection.”You’ve chosen me now, to carry (my son). Iam waiting, in a silent prayer, I am frightened by the load I bear. In a world as cold as stone. Must I walk this path alone? Be with me now. Be with me now.Breath of heaven hold me together.Be forever near me….” My tears rushed and broke my walls. I struggled to keep them under control.The words from the soloist’s song were so true. My role in caring for my son gives me the knowledge to know the nativity story at the most personal level.
I sat in the third row, clearly seen by the pastor, yet trying to hide my tears. The journey is so long, ardorous and without rest. My son’s full rehabilitation still not within sight. “Breath of heaven, lighten my darkness, pour over me your holiness. Breath of heaven”.
I continued to listen to the words and know them as my own; “Do you wonder as you watch my face, if a wiser one should have had my place? But I offer all I am for the mercy of your plan. Help me be strong, help me be, help me.” I couldn’t slow the tears because it was all true. The pain, the wonder of my angel’s miracle is real too. He’s almost walking by himself. He wr
My middle son turned to me, seeing the tears and asked me what was wrong. I replied, “I have a headache.” He hugged me. My mood lifted. The soloist sang, “Breath of heaven, hold me together, be forever near me, breath of heaven”. My encouragement taken from the words of a song and my son’s embrace, I stopped the tears.
Not knowing a fellow parishener was watching, she came over to say, “You’re the best mother, I’ve ever seen. You care for him so well.”
His spontaneous smile and happiness to be,
Cheers my leaden heart,
Giving me a new breath,
Deep from within,
Released air carries sadness away.